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Joined 11 months ago
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Cake day: August 1st, 2023

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  • Yep, like just like everything else, not everything works for everyone. I’ve been awake for 26+ hours to the point I’m hallucinating and still unable to fall asleep. But apparently I just have to wait till I’m tired enough. As if being awake for 26 hours straight isn’t enough? I also can generally make it so I can be awake at the right time if left to my own devices. Which is why I’m really glad I’m out of my parents house, because they would decide “you’ve been sleeping long enough” and wake me up an hour after I fell asleep.














  • Yep, like at one point only needing my rescue med three times a week was an improvement. I can only take it three times a week, and would just have to suffer waiting till I could take more. Then it was two doses a week, and now at about 1.5. It’s not good, but it’s better. I’m not expecting miracles, I know it’s incurable, but I’ll still try for better.


  • Yeah, like I’m not that bad all the time, usually I’m pretty okay, and can live my life fairly normally, but when it gets bad it’s BAD. And when that happens I can’t push anything, physically or mentally, I just have to rest. I go for walks when I’m up to it, try to have some semblance of a routine, eat fairly healthy, get some exercise, hang out with friends, all that stuff. I’m actually doing way better than I was a few years ago. I still have a long way to go, but I’ve already come a long long way. I still end up in a slump quite often, but it’s in general an upward trajectory. I count that as a victory. Not in the “I’m accepting that this is the end” way, but in the “hell yeah I came this far” way.